Klin Onkol 2004; 17(Suppl 1): 39-44.
Summary – úprava dle přijatých změn v českém textu: Epidemiological cancer registries should be accepted as a source of very valuable information that enable planning and optimization of anti-tumor therapy and diagnostics at population level (e.g. evaluation of diagnostic and therapeutic results, regionally specific evaluation of epidemiological parameters and estimation of load of specified hospitals, population risk analyses, unbiased population-based survival analyses). As based on wide experience, the parametric structure of population database should be minimized, primarily focused on epidemiology and include only rare clinical entries. Reasonable registration of cancer data for clinical conclusions must cover following key components, that can not be obtained in simple data set universal for all diagnoses: (1) initial risk stratification of cases, (2) evaluation of diagnostic and therapeutic procedures and reached therapeutic response (namely remission of the disease), (3) report on relapse/progression of the disease and associated diagnostic identification, (4) time and cause of death. None of these parameters could be omitted if the registry is targeted for clinical interpretation. Such information standard can be reasonably guaranteed only in specialized clinical registry supervised by expert teams.
